Torticollis query summary

Thank you to all of you who responded to my inquiry regarding positioning
device options for my adult acquired torticollis patient.  I have pasted
in the following two statements which represented the consensus amongst the
respondents.

 

Fillauer has a more portable device that is secured to the shoulder
and repositions the head in the triaxial planes. We would just need a
mold of the patient. We have used it for patients with acquired
torticollis.

 

Try the non-invasive Halo from Lerman. You can also attach it to the front
of the tlso if needed.

 

Original message:

Can anyone advise me regarding a source for a torticollis head positioning
device similar to a ball-in-socket type custom wheelchair head rest? 
Preferable a support that can be that can be mounted to a TLSO.

I have a patient with adult acquired torticollis secondary to extended
bed
rest and subsequent contracture.  He also has severe trunk
flexion/weakness.  He is approximately 120 Lbs and very bony.  He has a
significant risk for skin breakdown under his orthosis.  His physician
ordered a TLSO with CTO superstructure which I attached to a flexible
plastic TLSO with soft interface.  This was relatively successful but
the
patient could not sustain the head position comfortably for long
durations.  The patient does stand in the brace (max assist).  His
physical therapist is requesting the above mentioned headrest
modification. 

Any helpful information would be greatly appreciated.

 

Sean Hembree, CP

Sierra Orthopedic Laboratory