Our son Floris, born 12 03 99, suffers from the FFU ( Femur Fibula Ulna ) complex in one leg. He has a
hypoplasic femur, an absent fibula, absent toes and an other malformations to his leg. When he starts to
walk, he will need a prosthesis. Maybe a part of his leg has to be amutated.
Is there in the USA, or somewhere else someone who is specialized is this complex. We already found
some literatere, but it is very rare.
Maybe there is an organisation for parents from children with FFU, or withe leg prosthesis.
Who can help???
Thank you!
Gerrion en Han Willems,
the Netherlands.