The Amputee Coalition released a study estimating the number of people living with limb loss and limb difference in the United States at more than 5.6 million people. The Coalition collaborated with Avalere, part of Avalere Health, a healthcare consulting firm, to conduct an analysis of insurance claims data.
Of the 5.6 million, nearly 2.3 million people are living with limb loss and 3.4 million people are living with limb difference.
“Historically, individuals born with limb differences are a subgroup that has been all but ignored in previous research,” said Natalie Harold, resource development manager.
The report acknowledged that the 5.6 million figure known estimate does not include everyone. Most notably, by using insurance claims data the study could only capture people covered under specific types of insurance. The analysis could not account for individuals who are uninsured or covered by Veterans Affairs or TRICARE. Data sources for this report include Medicare, Medicaid, and commercial insurance claims.
“Information about those born with limb differences or those who undergo amputations is not data that is collectively tracked in a systematic way in the US. With this new information and evidence of increased prevalence we know there is a tremendous need for increased support and education, ensuring those living with limb loss and limb difference can thrive in their lives as they choose. We are now able to ground our work to improve quality of life outcomes and health policies for our community and those at risk of amputation with this prevalence data,” said Ashlie White, chief strategy and programs officer.
Prior to this study, researchers have relied on outdated predictions for estimating the limb loss population and the limited data that is available on the limb difference population. Updated prevalence estimates are needed to inform national advocacy efforts and policy initiatives that will increase the support the Coalition can provide to the growing community of people with limb loss and limb difference and improve their access to equitable care. “Gaining a better understanding of this incredibly diverse community was the primary motivation behind the investment and the effort undertaken to yield this new information,” the Coalition said.
To download the white paper, “Prevalence of limb loss and limb difference in the United States: Implications for public policy,” visit the Amputee Coalition’s website.
To read more about the results, visit “How Many US Amputees Are There? More Than You Think. (livingwithamplitude.com).”
