Kenney Orthopedics, headquartered in Kentucky, joined the National Quality Limb Loss & Preservation Registry (LLPR). Kenney Orthopedics will participate with its patient care locations in Kentucky, Indiana, and North Carolina.
The goal of the LLPR is to generate knowledge about which advances and treatments impact the care of individuals with limb loss and limb difference. Consistent with quality registries that focus on other health populations, the LLPR will collect universal data elements and link hospital, provider, and patient-reported outcomes over time. The registry will strive to alleviate significant data gaps, increase access to care, and improve care models related to prosthetics and limb preservation in the United States.
“The Limb Loss & Preservation Registry is critical for the future of patient care, advances in technology, and a range of other sustainable efforts in the field of prosthetics,” said John “Mo” Kenney, CPO/L, FAAOP, president of Kenney Orthopedics. “The data gap is considerable, and, in some cases, available statistics are over two decades old, and longitudinal data has never been collected.”
The registry was born out of a federal contract awarded to the Mayo Clinic via the National Institutes of Health and Department of Defense. The registry is currently enrolling O&P providers and hospital systems and will be transitioning to further operate within a nonprofit parent organization to be named this year.
“We are excited to start collecting data and providing evidence on the patterns, the effectiveness of clinical practices, and technologies,” said Kenton Kaufman, PhD, a Mayo Clinic researcher and head of the project. “With representation from key stakeholder groups including healthcare team members, researchers, regulators, manufacturers, payers, industry representatives, and patient groups, we can now geographically and demographically provide data that will improve prevention, treatment, and rehabilitation approaches for this population.
“The Limb Loss and Preservation Registry addresses a substantial public health knowledge gap by giving stakeholders the ability to benchmark limb loss statistics, and analyze data by age, gender, type of limb loss or preservation surgery, prosthetic device as well as ask new questions. Registries are extremely valuable to all practice sizes because you can leverage the high volume of data to your patients’ positive outcomes.”
To learn more about the LLPR registry, visit its website.
