Dear Listservers
I have a 13y old patient with Coffin Loury Syndrome.
We have been managing his plano-valgus posture over the years with UCBL’s and semi-rigid FOs.
Just in the last few months he has developed a startle reflex that causes all his muscles to relax, so he has drop attacks – about 6-7 a day. This may be a side effect from recent mufti level spinal surgery.
This of course causes concern from a falls point of view but he also somehow on his R>>L side goes into an equinas position at foot/ankle – that in turn has been causing soft tissue injuries.
I am looking for some solutions to prevent the equinas and to some extent knee flexion. A GRAFO’s are the obvious choice – but I don’t want them too rigid either for everyday walking. I was thinking long the lines of a custom carbon ½ proximal GRAFO with a flex strut still like the Kinetic research noodles, or maybe an adjustable dorsi/plantar stop Co-Poly AFO.
I know i can’t have the best of both worlds – but does anyone have other suggestions?
Thankyou in advance.
Ben McMurtrie
Orthotist – Geelong Orthotics, Australia
Ben McMurtrie
Geelong Orthotics P/L
70 Bellerine St
Geelong 3220
Vic Australia
Ph 613 5224 2200
Fax 613 5223 3229
Mob 0412 822 427
E [email protected]
W www.geelongorthotics.com.au
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