In a message dated 4/7/98 9:31:16 PM, [email protected] wrote:
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Pat–
I have successfuly fit three Cornelia de Lange kids over the past few years.
Most have been a bit older when the attempt was made–the youngest being about
5 years.
The first was a bialteral BE (In WY) with forearms tapering to single digits.
Hermetically sealed switches were used to actuate “cookie crusher” enabled
VASI 2-6 hands. Measured IQ of 7. Originally fit at about age 12 and as far
as I know, the first CdL to attempt electric prosthetic fitting. Training
began by using a microswitch operated fan–(she liked the fan to blow on her
face) until she understood cause and effect. Once the arms were fit, her
favorite food (french fries!) was inserted to demonstrate the hand’s
usfulness.
She is now about 22 years and wears the arms all day. In fact, she gets quite
upset when they are missing. If we have to keep them for repairs, she ends up
wearing slippers on her arms or she’s not happy. We presented this case at
ACPOC a few years ago w/ video.
#2 was a bilateral AE (In NY)–short right/ very long left (a skinny “stick”
basically). Measured IQ–I don’t remember; however, greater than patient #1.
We fit with a cookie crusher enables single electrode and a VASI 0-3 hand
mounted on a modified Otto Bock ball & socket wrist which was itself mounted
at almost 90° to the axis of the humerus on the anteromedial corner of the
distal humerus, i.e., No Forearm. A so-called “Mommy” swtich was installed so
the OT & Mom couild open the hand esternally to insert objects. Training was
basically “accidental” discovery of the hand.
#3 is a bialteral BE with “chicken wing” appearing arms. He is being fit with
our collaboration in TX. The fit presently is unilateral, BE, with a
microswitch/cookie crusher actuated w/ Mommy switch and VASI 0-3 hand–similar
to the first case.
Dexterity of the digit is questionable. The switch is being incorporated into
an electric toy for training. Final result is pending.
I’d be happy to consult in the case if you have the need.
I can be contacted at this eMail address or at [email protected]
otherwise, call 801-328-9728.
J. Thomas Andrew, CP
Ability Prosthetic Systems, Inc.
