Saturday, May 28, 2022

Re: UE prosth challenge

JTAndrew

In a message dated 4/7/98 9:31:16 PM, [email protected] wrote:

<>

Pat–

I have successfuly fit three Cornelia de Lange kids over the past few years.

Most have been a bit older when the attempt was made–the youngest being about

5 years.

The first was a bialteral BE (In WY) with forearms tapering to single digits.

Hermetically sealed switches were used to actuate “cookie crusher” enabled

VASI 2-6 hands. Measured IQ of 7. Originally fit at about age 12 and as far

as I know, the first CdL to attempt electric prosthetic fitting. Training

began by using a microswitch operated fan–(she liked the fan to blow on her

face) until she understood cause and effect. Once the arms were fit, her

favorite food (french fries!) was inserted to demonstrate the hand’s

usfulness.

She is now about 22 years and wears the arms all day. In fact, she gets quite

upset when they are missing. If we have to keep them for repairs, she ends up

wearing slippers on her arms or she’s not happy. We presented this case at

ACPOC a few years ago w/ video.

#2 was a bilateral AE (In NY)–short right/ very long left (a skinny “stick”

basically). Measured IQ–I don’t remember; however, greater than patient #1.

We fit with a cookie crusher enables single electrode and a VASI 0-3 hand

mounted on a modified Otto Bock ball & socket wrist which was itself mounted

at almost 90° to the axis of the humerus on the anteromedial corner of the

distal humerus, i.e., No Forearm. A so-called “Mommy” swtich was installed so

the OT & Mom couild open the hand esternally to insert objects. Training was

basically “accidental” discovery of the hand.

#3 is a bialteral BE with “chicken wing” appearing arms. He is being fit with

our collaboration in TX. The fit presently is unilateral, BE, with a

microswitch/cookie crusher actuated w/ Mommy switch and VASI 0-3 hand–similar

to the first case.

Dexterity of the digit is questionable. The switch is being incorporated into

an electric toy for training. Final result is pending.

I’d be happy to consult in the case if you have the need.

I can be contacted at this eMail address or at [email protected]

otherwise, call 801-328-9728.

J. Thomas Andrew, CP

Ability Prosthetic Systems, Inc.

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