The Thought Leadership & Innovation Foundation (TLI) announced the transfer of ownership of the Limb Loss and Preservation Registry (LLPR) from the National Institute of Child Health and Human Development (NICHD) to TLI in collaboration with the Amputee Coalition.
The LLPR was established in 2018 under a contract funded by the National Institutes of Health.
“With this transfer of ownership, TLI is poised to further the LLPR’s mission of improving the quality, safety, effectiveness and cost of limb loss and limb difference treatment and preservation. We are honored to steward the LLPR into this new chapter,” said Shawn Murphy, vice president, TLI and former program manager for LLPR under NICHD and Mayo Clinic.
A centralized data warehouse, the LLPR plays a crucial role in addressing public health knowledge gaps, refining rehabilitation approaches and guiding the development of functional devices for people with limb loss and limb difference. As part of TLI, the registry will maintain its multistakeholder model, fostering collaboration among care providers, care sites, payers, device manufacturers, suppliers and regulatory agencies.
“This transition marks a significant step forward in our collective efforts to drive healthcare innovation and improve outcomes for individuals facing limb loss and limb difference,” said Cass Isidro, president, Amputee Coalition. “Together, we will continue to provide valuable resources and support to individuals who have limb loss and limb difference, empowering them to live life fully and ensuring that no on faces the challenges and complexities of their journeys alone.”
